Monday, August 11, 2008

Please help

Below is from my neighbors blog. http://sbwlw.spaces.live.com/ Slade and Wendy adopted a beautiful boy Nicholas from Russia. It turns out that he has something called Fragile X. Please take a minute and go to the AMEX site and vote.


Ok, I know that there are many, many readers out there. I see your numbers on my counter everyday. So, I am asking a favor of all my blog readers. I need you to VOTE. Not for the president but for a piece of the 2.5 million dollars that AmExpress is donating to organizations, and FRAXA is one of the organizations. You do not even have to be an AMEX member to vote. Here's the site to vote: http://www.membersproject.com/project/view/PUPSKI
If you have been reading the blog, you know that Nicolas was diagnosed with Fragile X back in July.
A little about Fragile X and the project
More than 1.1 million children and adults worldwide – 1 in 4,000 males and 1 in 8,000 females -- suffer from Fragile X, the most common known inherited cause of intellectual impairment and autism. Fragile X can cause seizures, mental retardation, anxiety, and obsessive-compulsive disorder. An additional 1 billion people around the world are carriers of this devastating disorder – most without knowing it.
Studies of Fragile X and autism have been galvanized by families and loved ones of the disabled. Clinical trials of new treatments are ongoing. But we have not yet found effective treatments or the cure, and children are waiting. The need for more funding for Fragile X research is urgent. More broadly, this project will show parents of disabled, suffering children everywhere that they are not helpless: by banding and working together, parents can find a cure

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